Social media has the power to bring people together. On World Rare Disease Day, FMD Chat releases its newest social media resource to help those around the world affected by fibromuscular dysplasia connect with one another including patients, their friends and family members, and healthcare providers. That new resource is fmdchat.org.
In the rare disease community, social media may be the only way for patients to connect with others who share their diagnosis. In American, a rare disease is defined as one that affects fewer than 200,000 patients, according to the National Organization for Rare Disorders. A disease or disorder is defined as rare in Europe when it affects less than 1 in 2,000 citizens. Overall there are more roughly 7,000 known rare diseases and disorders. Rare diseases affect an estimated 350 million people worldwide.
Fibromuscular dysplasia is a disease that affects major arteries—most often the carotid, renal, vertebral, and mesenteric arteries. The cause of FMD is un…
In the rare disease community, social media may be the only way for patients to connect with others who share their diagnosis. In American, a rare disease is defined as one that affects fewer than 200,000 patients, according to the National Organization for Rare Disorders. A disease or disorder is defined as rare in Europe when it affects less than 1 in 2,000 citizens. Overall there are more roughly 7,000 known rare diseases and disorders. Rare diseases affect an estimated 350 million people worldwide.
Fibromuscular dysplasia is a disease that affects major arteries—most often the carotid, renal, vertebral, and mesenteric arteries. The cause of FMD is un…